Living with Lupus
Have you been diagnosed with lupus or know someone who has? Concerned what your life will be like going forward? Take comfort in the fact that the majority of lupus patients are only mildly afflicted, and their symptoms easily managed. Also take comfort knowing millions of Americans are living normal lives with the disease – and you can too.
Starting a Support Group
If you are interested in joining a lupus support group, your first step might be to determine what is available in your area. You can do this a number of ways, including contacting your healthcare provider, contacting a local hospital and speaking with the patient advocate, or by using the Internet and other reference resources to determine what’s around.
If you are interested in joining a lupus support group, your first step might be to determine what is available in your area. You can do this a number of ways, including contacting your healthcare provider, contacting a local hospital and speaking with the patient advocate, or by using the Internet and other reference resources to determine what’s around.
Patient Advocates: How to Pick One and How to Be One
As a lupus patient, there may be times when your disease has such a powerful effect on your well being that you may not feel capable of adequately managing your healthcare needs, especially when it comes to navigating the healthcare system. When and if this occurs, you may want to consider engaging the help of a patient advocate.
As a lupus patient, there may be times when your disease has such a powerful effect on your well being that you may not feel capable of adequately managing your healthcare needs, especially when it comes to navigating the healthcare system. When and if this occurs, you may want to consider engaging the help of a patient advocate.
Living with Lupus
Those who have been newly diagnosed with lupus may find themselves shocked at first, relieved, then, knowing what they have, and finally confused as to what their next steps will be. Find out here.
Those who have been newly diagnosed with lupus may find themselves shocked at first, relieved, then, knowing what they have, and finally confused as to what their next steps will be. Find out here.
Tips for handling your lupus during vacations
Vacation time means fun time for everyone, including those suffering from lupus. It can be a frightening prospect to leave the safety net of home to go on vacation, but with some practical planning, lupus patients can have some time off too while still taking care of themselves.
Vacation time means fun time for everyone, including those suffering from lupus. It can be a frightening prospect to leave the safety net of home to go on vacation, but with some practical planning, lupus patients can have some time off too while still taking care of themselves.
What does Lupus Look Like? A Patient's Photo Gallery
Curious what a malar, or butterfly, rash looks like? This Flickr.com member, Chantal5000, shares some photos of her butterfly rash during one of her stronger flares.
Curious what a malar, or butterfly, rash looks like? This Flickr.com member, Chantal5000, shares some photos of her butterfly rash during one of her stronger flares.
A Man, a Bike, a Mission: Eradicate Lupus
In an effort to raise awareness about lupus and lupus sufferers, Australian Geoff Thomas, also a lupus sufferer, biked more than 9,000 miles across the United States in 2007.
In an effort to raise awareness about lupus and lupus sufferers, Australian Geoff Thomas, also a lupus sufferer, biked more than 9,000 miles across the United States in 2007.
True Story of Alicia Springgate, a Woman with Lupus
One of the first steps in dealing with a lupus diagnosis is coming to understand that you’re not alone. Here, the true story of a woman with lupus who was diagnosed after recurring bouts of pleurisy, lung effusion and congestive heart failure.
One of the first steps in dealing with a lupus diagnosis is coming to understand that you’re not alone. Here, the true story of a woman with lupus who was diagnosed after recurring bouts of pleurisy, lung effusion and congestive heart failure.