First, neonatal lupus is not systemic lupus erythematosus. Neonatal lupus is a temporary condition marked mainly by a rash and possibly abnormal blood counts (low platelets, or anemia) that resolve in a matter of months. A blood test and observation of the rash is usually all that is required to determine if a baby has neonatal lupus. These abnormalities (rash, blood) are rarely serious and will usually go away in a few weeks with no treatment
In some rare cases, congenital heart block will develop. This means that the baby’s heart cannot beat normally due to a blockage of scar tissue. If heart block is diagnosed before birth, but the baby is fine, either no treatment will occur or steroids can be given to the mother (that will transverse the placenta) that may make the heart beat normally. If the baby is not doing well, and it is safe to deliver, this is often the best treatment, since, if needed, a pacemaker can then be surgically inserted to regulate the heartbeat. However, this may not be needed.
It is best to rely on your obstetrician and pediatrician for the best form of treatment for a baby with neonatal lupus.
Source:
Neonatal Lupus. Lockshin, M.D., Michael D. Special Assistant to the Director, Clinical Center, NIH, Bethesda, Maryland. National Institutes of Health. CARING AND SHARING Newsletter 6, December 1996.
