Advocacy Day 2009 Coming Soon
The Lupus Foundation of America’s Advocacy Day 2009 is coming up fast. This year’s event will take place on March 2 and 3 in Washington, D.C.
This is the 11th Advocacy Day, during which people with lupus, friends, family and other lupus advocates descend on the U.S. capital to urge lawmakers to fund further research, pass legislation – whatever they can – to help further the understanding of this disease, as well as find and create better treatment options.
This year’s Advocacy Day may focus on the 50th anniversary of the U.S. Food and Drug Administration’s last approval of a drug specifically for lupus. No drug targeted to the disease as been approved since 1959.
The event includes a meet and greet lunch, advocacy training sessions, and a dinner, featuring speaker Susan Manzi, M.D., MPH, LFA Board & Medical-Scientific Advisory Council Member, and Associate Professor of Medicine at the University of Pittsburgh.
Those interested in registering for the event can do so on the LFA’s Web site.
Comments
I have only been diagnosed with Lupus since this past summer, but one thing I have noticed is a lack of organization for Lupus awareness. October is Lupus month, that is the month when the walks are done. World Lupus day is in May, and now you speak of Advocacy days in March! Sharing October with Breast Cancer is an issue too.
Right now I am too sick to change these things but when the people with the disease are confused about days and months, how can we expect others to become more knowledgeable?